X-linked reticulate pigmentary disorder

with systemic manifestations
Administrator 29 March 2011 PDF Print E-mail

Dear friends from Australia.
This letter is for you. You that look at my facebook page, at my website. You that decided to keep in the shade. 
I built this website with effort, sleepless nights, time that I stole to my children. Now the website is growing up, even without your help. I could use thousends of words to beg your collaboration, but I'm sure that it would be useless. XLPDR teached me that everyone has his own way to react, his own time, rhytm and story, his own path. You already reached your arrival point. I'm trying to do the same, but in the meanwhile I try to help those that are walking behind me (no one, I hope so), with informations, with names and contacts that I can find. 
Just let me tell you that you'll always be welcome, when you'll decide to give your contribution, or maybe just to say "hallo". You know how to find me.
The website, the facebook group, they are also yours, they belong to everyone that needs them, they belong to the XLPRD community!
Thank you